Before you begin, you should know that the
story of the Peterson Family Foundation is both a joyful story
and a tragic story. It may make you cry. But we didn’t create
this web site to share our sadness. We’re here to give you
peace, hope and inspiration during a very difficult time in your
life. To connect you with a community of wonderful and talented
people. Most of all, we want to share the love, kindness and generosity
we’ve experienced throughout our family’s journey,
so that you can pass it on.
Karen and I met at Berkeley. I was a
junior and she was a freshman. Midway through our first real date
at the Pi Phi Spring Dance, we
knew we were on to something special. Fast forward to 1998 and we’re
married with two incredible 3-year old twin boys and loving every
minute of our life together. One day, we noticed that Eric was constantly
thirsty and seemed to tire more easily than his brother Kort. A routine
visit to the pediatrician was just the beginning of our lifelong
relationship with pediatric diabetes. Months later, during treatment,
we discovered Eric also had leukemia. If you have children in your
life, I don’t need to say anymore about what that was like.
A few years later in March 2001, Karen, a beautiful, athletic,
dynamic, native California girl who hiked, swam and skied, felt
some pain
in her back. Then she got a cold that wouldn’t go away. Finally,
she went to the doctor, thinking that maybe it was another bout
of pleurisy, a lung inflammation she’d had during pregnancy.
When an abdominal X-ray revealed a small, dark spot, we reacted
as any
young, healthy, successful couple would. We told ourselves that
whatever it was, we’d treat it, Karen would recover and life
would go on. One month, two specialists and one five-hour surgery
later, we
were shell-shocked to learn that the spot was mesothelioma,
a rare, asbestos-related cancer that had metastasized from her
lungs. As
we learned more about mesothelioma, the nightmare became even more
unreal, as this form of cancer affects only about 300 American
women each year. We couldn’t believe this was happening to
us, especially with Eric’s illnesses. Our life was rapidly
crumbling around us.
We soon learned that Karen’s cancer
had begun decades earlier, during her childhood in southern California
where her father owned
a lumberyard. The lumberyard was no longer there, and her father
had died two years earlier of ALS, also known as Lou Gehrig’s
disease. Fortunately, her mother still had all his files in the
garage. They showed that over the years, the lumberyard had stocked
products
containing asbestos from 23 different manufacturers. Together with
the doctors, we surmised that Karen must have inhaled an asbestos
fiber either while playing in the lumberyard or hugging her dad
when he came from work with microscopic fibers on his clothing.
We immediately began consulting surgeons across the country.
On September 11, 2001, we walked into Columbia University Medical
Center in New
York City for a chemotherapy follow-up with one of her physicians.
We entered the hospital moments before the first plane crashed
into the World Trade Center. By the time we left, both towers had
crumbled,
releasing vast amounts of asbestos and other toxic materials into
the air. Today, the magnitude of the post-9/11 health crisis is
only just being understood. On a subsequent visit to New York,
we met
with one doctor who seemed not to notice that Karen and I were
even in the room. He just looked at Karen’s scans and muttered, “There’s
nothing that can be done.” We left his office, too numb to
even speak.
During all of this, Eric was being treated successfully by Byron
Smith, MD. This amazing pediatric oncologist works at the John
Muir Medical Center in Walnut Creek, California in conjunction
with UCSF.
I’m happy to report that Eric is now cancer-free. After our
fruitless travels across the country, UCSF is also where we found
some measure of hope and healing for Karen. After waiting three
hours to meet with David
Jablons, MD, we were delighted when a
young, vibrant
man bounded into the room, looked directly at Karen and gently
asked her to talk about what was going on. After listening carefully
to
her, he said, “I can make things better for you.” Dr.
Jablons then described how he could drain the fluid in her lungs
and strip as much of the tumor as possible, allowing her to breathe
normally. Karen rebounded from the surgery and for the next nine
months, she spent less time coughing and more time laughing with
Kort, Eric and me.
My wife Karen was the strongest, most valiant
person I’ve ever
known. She stayed with us through Christmas 2002 and then passed
away on December 27. Since then, I’ve devoted my life to
being a good father to Kort and Eric and honoring Karen’s
divine spirit with this foundation.
Jeff Peterson
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